Deficiency, disability, neurology and literature
*Correspondencia: Dra. Susana Collado Vázquez. Facultad de Ciencias de la Salud. Universidad Rey Juan Carlos. Avda. Atenas, s/n. E-28922 Alcorcón (Madrid).
Fax: +34 914 888 831.
E-mail: susana.collado@urjc.es
Introduction: Literature has always been attracted to neurological pathologies and the numerous works published on the subject are proof of this. Likewise, a number of physicians have been fiction writers and have drawn on their scientific knowledge to help develop their stories.
Aims: The study addresses the appearance of neurological pathologies in a sample of literary works and examines the description of the disease, its treatment, the patient's view and the relationship between healthcare professionals and the socio-familial milieu.
Development: We review some of the greatest literary works of all times that deal with neurological pathologies, such as Don Quixote, Julius Caesar, David Copperfield, The Idiot or Miau, and many of them are seen to offer a very faithful portrayal of the disease. Similarly, we have also reviewed works that provide a personal account of life with neurological diseases and the ensuing disability written either by the patients themselves or by their relatives, examples being The Diving Bell and the Butterfly, My Left Foot or One Chance in a Thousand.
Conclusions: Literature has helped to offer a realistic vision of neurologically-based pathologies and the healthcare professionals who work with them; there are many examples that portray the experiences of the patients themselves and the importance of support from the family is a feature that is constantly underlined.
Objetivos Se aborda la aparición de la patología neurológica en una muestra de la literatura y se estudia la descripción de la enfermedad, el tratamiento, la visión del paciente y la relación de los profesionales de la salud con el entorno sociofamiliar.
Desarrollo Se han revisado algunas de las principales obras de la literatura de todos los tiempos que han abordado la patología neurológica, como El Quijote, Julio César, David Copperfield, El idiota o Miau, observando que, en muchas de ellas, se ofrece una visión muy fidedigna de la enfermedad. Del mismo modo, se han revisado obras que son testimonio personal de pacientes o familiares de la vivencia de la enfermedad de origen neurológico y la discapacidad derivada, como La escafandra y la mariposa, Mi pie izquierdo o Una posibilidad entre mil.
Conclusión La literatura ha contribuido a dar una visión realista de las patologías de origen neurológico y de los profesionales sanitarios relacionados, existiendo múltiples ejemplos en los que se muestran las vivencias de los propios enfermos y se resalta la importancia del apoyo familiar.